Galway Cycle 2022

In aid of Heart Children Ireland

Register for 2022 now!

Heart Children Ireland

Heart Children Ireland is the national organisation that supports children born with Congenital Heart Disease (CHD) and their families. CHD is term that covers a range of defects present in the structure of a baby’s heart at birth. These defects affect the way the organ works and how blood is pumped around the body. CHDs can vary from mild to severe and no two children have the same diagnosis.

Our mission is to help these children live the best life possible in hospital, at home and in school and to support the whole family unit while they are on the same journey.

Background
Congenital Heart Disease is the most common birth defect and every year, 5-600 babies are born in Ireland with the condition. The diagnosis is hugely stressful for parents, both psychologically, financially and practically. Some children make a full recovery after an initial surgery. Others face a lifetime of hospital visits and repeated surgeries which are required to sustain their lives.

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CoaguChek


Heart Children Ireland’s CoaguChek Programme funds self-test devices to children which allow them check their warfarin levels from home through finger-prick blood testing without needing to make regular visits to hospital. The children/families we support live in all corners of the country, many located far from general hospitals. The taking of bloods, using needles, finding blood veins, etc can be very time consuming and traumatic and the simplicity of doing it safely from home (especially in Covid times), by a parent, using finger-prick testing, is less emotionally draining and more effective for the child and the whole family unit. The cost of supplying a CoaguChek machine to a child/family is approx. €500. Requests for the devices are made by the Clinical Nurse Specialists in the Children’s Heart Centre, CHI Crumlin. They assess each family’s need, financial resources and suitability to receive funding. In 2021, requests for the devices increased by 375%, largely driven by Covid, and this trend is likely to continue.
The success of the programme will be in the number of devices that we are able to fund to children living with Congenital Heart Disease, over the next five years. Some children will remain on Warfarin medication for life and will need a device permanently. Others, will be on the medication short-term and when they are finished, their CoaguChek device is returned to Crumlin and recycled to benefit another patient.

Funding from the Galway Cycle would provide surety that we can continue to support children and families and their continuing care post discharge from hospital following major surgery for several years to come. The provision of the CoaguChek device reduces infection risk for children with lower immunity who will no longer need to regularly access a hospital setting; reduce trauma for children facing regular blood test and generally reduced the stress in the life of a family caring for a child with a long-term illness.

Latest News

2022 iDonate Live Now

If you’ve registered for the 2022 Galway Cycle, you may be wondering how to fundraiser while still potentially distant from everyone. Thankfully, one simple way is to visit Galway Cycle[…]

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February 21, 2022 0

Sponsorship and Registration

Hi everyone, Now that training is at full tilt and we’re banking those miles, we just thought we’d drop this into your inbox. First off, if you haven’t already registered,[…]

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February 17, 2022 0

Heart Children Ireland

Congratulations to Heart Children Ireland on their selection as our charity partner for 2022! Heart Children Ireland is the national organisation that supports children born with Congenital Heart Disease (CHD) and[…]

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November 15, 2021 0

Get Involved!

If you would like to support the Galway Cycle in fundraising for Heart Children Ireland, there are a number of ways you can get involved

Donate with PayPal

If you would like to donate in support of the Galway Cycle, and the outlined project, all contributions are gratefully accepted through PayPal

Donate Now

Cycle!

While in 2021 we will not be cycling to and from Galway, we have of course retained the option to cycle 400km for your fundraising!

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Collect

Don’t have a bike?  Not to worry, you can still join us for the weekend to shake buckets and raise awareness of our charity partner!

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64

TIMES ACROSS IRELAND

€1,000,000+

RAISED FOR CHARITY

12,000+ KM

CYCLED

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